This is a forum for GNE Myopathy where I discuss the challenges and insights I encounter on my journey in living with a progressively "weakening" disease. GNE Myopathy is also known as Hereditary Inclusion Body Myopathy (HIBM). I will invite others to share their stories, tips, and comments. I will discuss potential treatments, clinical trials, current research, and resources available for patients with GNE Myopathy.
tara
Friday, July 20, 2012
Out and About at UCLA Campus
(Information for patients travelling to UCLA)
UCLA campus is nestled in beautiful Westwood area of Los Angeles. The streets are not as busy and chaotic as Los Angeles proper. The campus was founded in 1919 and stretches over 419 acres. There are some beautiful sites and I like to observe some of the architecturally quaint and interesting buildings on the campus and nearby.
When I travel to UCLA, I usually stay at the Tiverton House. It has about 100 rooms for patients and family visiting the Medical Center. The Tiverton's staff are very hospitable, helpful, and friendly. They have handicapped accessible rooms, and an accessible shuttle to take patients to the Medical Center. Request for the shuttle needs to be made 30 minutes prior to appointment time. There is a library, a business room with 2 public computers/printer, a very nice sitting room and some outdoor sitting areas. They offer free newspapers, breakfast and have a kitchen for those wishing to prepare their meals. There is also a refrigerator and shower chair in the accessible rooms.
Almost all nearby business are accessible and they are in close vicinity to Tiverton House. There are nearby restaurants that offer room delivery and a big grocery store less than half a block from the Tiverton House. I love the food at "Native Cafe" which is close by and serves delicious vegan food. There is a cafe opposite the Medical Center and may be little challenging for someone with HIBM to walk to. I use my battery operated wheelchair to go to my appointments, restaurants, and tour around the campus. Somehow it allows me to maintain some semblance of independence.
Good luck to you all going to the Medical Center. Please add to this blog if you have additional information that may help others.
Link to the Tiverton House.http://tivertonhouse.ucla.edu/
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2 comments:
Hi Tara
Yes, UCLA is a beautiful campus. I like the statues of owls in front of the library in the quad.
Cesar: Great session with you. Thanks. I have not gone to the library area yet. Will check it out.
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