To my viewers from around the world - I appreciate you viewing my blog and comments whether private or public. You give me the courage to continue with experiencing the challenges of physical challenges . Please feel free to communicate with me on how I may be of service.
Thank you.
Tara
This is a forum for GNE Myopathy where I discuss the challenges and insights I encounter on my journey in living with a progressively "weakening" disease. GNE Myopathy is also known as Hereditary Inclusion Body Myopathy (HIBM). I will invite others to share their stories, tips, and comments. I will discuss potential treatments, clinical trials, current research, and resources available for patients with GNE Myopathy.
tara
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