This is survey from Global Genes Project seeking patients with rare disease participation. Here are their instructions and link.
Thank you.
Tara
Patient Survey: We need your help!
Does your doctor get thumbs up or thumbs down?
Was your or your child’s rare disease diagnosis delayed due to lack of knowledge by doctors?
Please take 10 minutes to tell us about your experiences with getting a rare and genetic disease diagnosis – your feedback on the process with your doctor could help lots of people with rare diseases!
By providing us with your experiences as a patient with a rare disease, you can help us meet our objectives!
Each participant who completes the survey will be entered into a drawing to win a $200 VISA gift card!
https://www.engagehealth.com/TakeSurvey.aspx?SurveyID=88MJ4mm
Does your doctor get thumbs up or thumbs down?
Was your or your child’s rare disease diagnosis delayed due to lack of knowledge by doctors?
Please take 10 minutes to tell us about your experiences with getting a rare and genetic disease diagnosis – your feedback on the process with your doctor could help lots of people with rare diseases!
By providing us with your experiences as a patient with a rare disease, you can help us meet our objectives!
Each participant who completes the survey will be entered into a drawing to win a $200 VISA gift card!
https://www.engagehealth.com/TakeSurvey.aspx?SurveyID=88MJ4mm
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