FDA User Fee Bill Promises Real Hope for Rare Disease Patients

 Please refer to the link attached, it is  from the Rare Disease Legislative Advocates website.
 I am very encouraged by this section...

The Creating Hope Act, sponsored by Kids v Cancer, creates additional incentives for industry to develop treatments for rare pediatric diseases and cancers by granting a voucher for priority review status that the sponsor can use to expedite review of another product. ULTRA/FAST, spearheaded by the EveryLife Foundation for Rare Diseases seeks to improve access to the accelerated approval process for rare disease treatments, significantly decreasing the time and cost of FDA review while maintaining high safety and efficacy standards.

http://www.congressplus.com/events/index.cfm?action=Event_Page&eventcode=QKN6SF&bypass=true