The Neuromuscular Disease Foundation will be hosting a Black and White Ball on October 14th. to honor two doctors from Israel Dr. Argov* and Dr. Rosenbaum**. These doctors have done significant work in the area of Gne-Myopathy. The NDF will also have a fundraising at this event to help towards funding a cure for this disease.
Please share this link of the event to help us to increase the awareness and funding of Gne-Myopathy.
http://www.eventbrite.com/e/ndf-black-white-ball-2015-tickets-18175871521
Professor Argov’s main focus of research has been in Jewish hereditary neuromuscular disorders. He first described the seminal features of GNE myopathy in Persian Jews in 1982. Thirty years later, in association with Dr. Stella Mitrani-Rosenbaum, they identified the gene defect in HIBM. This prolonged collaboration has done much towards understanding the mechanism of GNE myopathy (HIBM) and in developing ways to treat it.
Dr. Mitrani-Rosenbaum is widely known for discovering the gene responsible for GNE Myopathy (HIBM) in 2001. Her lab is now dedicated to research on this condition, and continues to study targets for potential treatment
Please share this link of the event to help us to increase the awareness and funding of Gne-Myopathy.
http://www.eventbrite.com/e/ndf-black-white-ball-2015-tickets-18175871521
Professor Argov’s main focus of research has been in Jewish hereditary neuromuscular disorders. He first described the seminal features of GNE myopathy in Persian Jews in 1982. Thirty years later, in association with Dr. Stella Mitrani-Rosenbaum, they identified the gene defect in HIBM. This prolonged collaboration has done much towards understanding the mechanism of GNE myopathy (HIBM) and in developing ways to treat it.
Dr. Mitrani-Rosenbaum is widely known for discovering the gene responsible for GNE Myopathy (HIBM) in 2001. Her lab is now dedicated to research on this condition, and continues to study targets for potential treatment
1 comment:
Thanks Tara! It's great to let folks know what we are up to!
Lale'
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