Dear Friends:
Here is an HIBM study that is taking place in France. Please check the hyper-link for specific information.
Clinical, Biological and NMR Outcome Measures Study for Hereditary Inclusion Body Myopathy Due to Mutation of UDP-N-acetylglucosamine 2-epimerase/N-acetylmannosamine Kinase Gene (GNE) (ClinBio-GNE)
https://clinicaltrials.gov/ct2/show/NCT02196909?term=hibm&rank=5
There will be a rare patient's advocacy summit to be held in Huntington Beach, California on September 11-12, 2014. For those who are unable to attend, there will be live streaming on the days of the summit. I have attached the link below.
Here is an HIBM study that is taking place in France. Please check the hyper-link for specific information.
Clinical, Biological and NMR Outcome Measures Study for Hereditary Inclusion Body Myopathy Due to Mutation of UDP-N-acetylglucosamine 2-epimerase/N-acetylmannosamine Kinase Gene (GNE) (ClinBio-GNE)
| Contact: Teresa Gidaro, MD PhD | +33 1 42 16 66 48 | t.gidaro@institut-myologie.org |
| Location: France | |
| Institute of Myology | Recruiting |
| Paris, France, 75013 | |
| Principal Investigator: Teresa Gidaro, MD PhD | |
There will be a rare patient's advocacy summit to be held in Huntington Beach, California on September 11-12, 2014. For those who are unable to attend, there will be live streaming on the days of the summit. I have attached the link below.
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