This is quite a moving video of a friend who also has HIBM. She gave this speech at the annual fundraising gala event for the Neuromuscular Disease Foundation. http://www.ndf-hibm.org/
The video is about thirteen minutes long. In her speech Jennifer poignantly describes what it is like to inhabit a body that suffers from HIBM. She has effectively encapsulate the whole spectrum of feelings of HIBM patients and their daily challenges.
Please take the time to watch this video, and visit the NDF web site.
Thank you Jennifer.
http://vimeo.com/79357093
The video is about thirteen minutes long. In her speech Jennifer poignantly describes what it is like to inhabit a body that suffers from HIBM. She has effectively encapsulate the whole spectrum of feelings of HIBM patients and their daily challenges.
Please take the time to watch this video, and visit the NDF web site.
Thank you Jennifer.
http://vimeo.com/79357093
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