Dear fellow patients and friends:
Here is a current newsletter from Advancement for Research Myopathies (ARM/HRG). There is an article on my family's journey towards getting a diagnosis. There are other news in this edition and my hope and I am sure of all HIBM patients is for us to be able to get a cure on the market as soon as possible.
Please refer to this link for the complete newsletter; the article on my family is on page 3.
Please refer to this link for the complete newsletter; the article on my family is on page 3.
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1 comment:
Great article Tara! Thanks for sharing.
John
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