This is a forum for GNE Myopathy where I discuss the challenges and insights I encounter on my journey in living with a progressively "weakening" disease. GNE Myopathy is also known as Hereditary Inclusion Body Myopathy (HIBM). I will invite others to share their stories, tips, and comments. I will discuss potential treatments, clinical trials, current research, and resources available for patients with GNE Myopathy.
tara

LA Mayor's Office Acknowledges the NDF's Advocacy with GNEM
Saturday, December 15, 2012
Keeping Pace With Adaptive Exercises
I would like to wish my readers, family, and friends a peaceful holiday season with your loved ones. For this post I thought it would be helpful and informative to post some of the exercises I have been doing over the years.
Since childhood, I have always been involved in athletics, yoga, and dancing.
After the diagnosis I was told my condition will get worse,and I should not engage in strenuous activities because it would break down my muscles faster.
Knowing myself, I know I would have to find exercises that I can do as my abilities decline. Gradually, I transitioned from "Ashtanga" yoga to the swimming pool, and now I have incorporated the swimming pool exercises with weight training, cardio workout and stretching. I have been quite fortunate to find two community colleges that offer these adaptive exercises for people with disabilities. All of these exercises, except for the cardio, I do many repetitions as many as I can do without exhausting my muscles. I feel had it not been for these exercises, I would have declined faster.
Photo by R.W.Swan(Alaska)
These two machines I do my cardio workout on. One is an elliptical and the other is called a Nu Step.
This machine is a leg press. I have to strap my legs to help them stay together. I add some weights to do this exercise. It helps to strengthen the gluteal and quadricepts muscles. I also feel that my hamstrings get some workout.
This equipment is called an abdominal press, it helps me to stregthen my core muscles which I think has helped me to maintain mobility over the years.
With this equipment I add some weights and pull it over my head. I also do bending exercises with this one, bending forward as if to pick something off the floor.
This equipment is a "lateral pull" I also add weights and pull down. I feel a good stretch around my shoulder blades.
I use this walker to assist me in navigating the exercise room.
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