A Profoundly Touching Video of a Friend with HIBM

This is quite a moving video of a friend who also has HIBM.  She gave this speech at the annual fundraising gala event for the Neuromuscular Disease Foundation.  http://www.ndf-hibm.org/

The video is about thirteen minutes long.  In her speech Jennifer poignantly describes what it is like to inhabit  a body that suffers from HIBM. She has effectively encapsulate  the whole spectrum of feelings of HIBM patients and their daily challenges.

Please take the time to watch this video, and visit the NDF web site.
Thank you Jennifer. 
http://vimeo.com/79357093

A More Functional Sleek Designed Wheel Chair With Reviews From Gizmodo

Finally, a wheel chair is coming on the market with functionality and "good looks" for people with disabilities.  I feel this company has done it's research in how people could more effectively use a wheel chair that assists in maintaining proper posture, ease in getting up, and sitting down. I had the pleasure of meeting one of it's founder and I am impressed with their vision to create this chair. Check out the wheel technology and the turning radius.  I do not know the cost for such a chair yet and if and when Medicare will cover it.  Please feel free to contact the company.
Best wishes to all my readers.  May your light continue to shine.
Tara

http://whill.jp/

Type-A is classified as a non-medical device. So, people will need to buy WHILL Type-A out of pocket... We plan to receive FDA clearance with our future model and already got started with it.

Review of this chair by Gizmodo
http://gizmodo.com/this-professor-x-approved-futuristic-wheelchair-is-arri-1450704347