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https://www.brazenconnect.com/event/thinkbeyondthelabel_may_21 |
This is a forum for GNE Myopathy where I discuss the challenges and insights I encounter on my journey in living with a progressively "weakening" disease. GNE Myopathy is also known as Hereditary Inclusion Body Myopathy (HIBM). I will invite others to share their stories, tips, and comments. I will discuss potential treatments, clinical trials, current research, and resources available for patients with GNE Myopathy.
Having trouble viewing this email? Click here |
https://www.brazenconnect.com/event/thinkbeyondthelabel_may_21 |